ProfessorDon Chalmers

Project Total: $299,424; The purpose of this Project is to undertake an assessment of the relevant Commonwealth, State and Territory legislation and regulations as it applies to the collection and use of health-related genomics information in the clinical and research settings, with a specific focus on current and emerging ethical, legal and social issues. This Project will deliver an evidence-based assessment of the relevant legislation and regulations and how these apply to the current and emerging ethical, legal and social issues identified, including any differences between jurisdictions. This project is intended to provide a high-level overview of the key issues and related legislative environment. It does not include development of recommendations or options to Government. Funded by: Department of Health, Disability and Ageing (Cth) ($299,424); University of Tasmania.

Project Total: $16,991; Anecdotal evidence and case studies have raised national concern about the equity of contracts in retirement villages. This research aims to: (a) scope the nature and scale of the problem; (b) highlight the gaps in empirical knowledge; (c) conduct an empirical pilot study to assess consumers' perceptions of and experiences with aged care contracts; and (d) explore some of the policy options that might be productive for restoring an equity in aged care contracts. Funded by: University of Tasmania - Grant-CAL Hothouse Research Enhancement Program; University of Tasmania ($16,991).

Project Total: $614,454; Funded by: Australian Research Council - Grant-Discovery Projects ($614,454); University of Tasmania ($10,400).

Project Total: $200,000; The aim of this project is to generate􀀿 'genomics hub' building on current research expertise, laboratory facilities, analytical capabilities, by providing a co-ordinated administration hub and core genomics reference resource. The Menzies has a strategic focus on utilising the unique features of the Tasmanian population for health research Including genomlcs to address the burden of disease in Tasmania. A/Prof Dickinson's team has attracted nationally competitive funding to build expertise, bioinformatics analysis skills in genomics, a laboratory facility equipped with next generation sequencing technology and a computing facility. The funding requested will address two immediate needs * a 'genomics hub' co-ordinator, and * a Tasmanian reference genome database. This will facilitate expansion of genomics research in Tasmania, by providing the necessary foundation for leveraging external funding, providing world-class training opportunities for students and importantly will position the University to keep pace internationally in the field of genomics. Funded by: University of Tasmania - Grant-Strategic Research; University of Tasmania ($632,000).

Project Total: $294,776; Research paradigms are changing rapidly in the Genome Era. Open access databases are increasingly popular and are required by public funding agencies. The role of material transfer agreements (MTAs) in this open access era is not clear. This project aims to assess the extent to which MTAs facilitate exchanges of biological materials between organizations in Australia and internationally. The project will assess whether MTAs are reflecting the open data access movement or maintaining traditional closed proprietary practices. The project will make policy, ethical and legal recommendations for the development of MTAs to promote exchange of materials nationally and internationally and to facilitate the developing collaborative research culture. Funded by: Australian Research Council - Grant-Discovery Projects ($294,776); University of Tasmania ($15,000).

Project Total: $281,000; New genetic technologies create the potential for personalized therapies and direct- to-consumer genetic tests. Changes to clinical trials and increased reliance on biobanks and data linkage by commercial entities are predicted. These developments demand ethical, regulatory and social scrutiny. This project will: create a map of personalized medicine in Australia; identify ethical, regulatory and social challenges; assess benefit sharing and public trust issues; evaluate and make recommendations on regulatory and governance measures needed to ensure best practice and highest ethical standards. This will help create better regulatory and governance environments for facilitating responsible research and clinical service delivery in Australia. Funded by: Australian Research Council - Grant-Discovery Projects ($281,000); University of Tasmania.

Project Total: $15,197; Funded by: Australian Research Council ($15,197); University of Tasmania.

Project Total: $8,134,805; Funded by: National Health & Medical Research CouncilNational Health & Medical Research Council - Grant-Program ($16,269,610); University of Tasmania.

Project Total: $8,134,805; Funded by: National Health & Medical Research CouncilNational Health & Medical Research Council - Grant-Program; Macquarie University; University of Tasmania.

Project Total: $1,100,000; Funded by: Australian Cancer Research Foundation - Grant-Research ($1,100,000); University of Tasmania.

Project Total: $20,000; Funded by: Australian Research Council - Grant-Linkage International ($20,000); University of Tasmania.

Project Total: $602,597; Funded by: Australian Research Council - Grant-Discovery Projects ($602,597); University of Tasmania.

Project Total: $10,000; Funded by: Australian Research Council - Grant-SRI Seed Funding for Research Networks ($10,000); University of Tasmania.

Project Total: $364,323; Funded by: Australian Research Council - Grant-Discovery Projects ($364,323); University of Tasmania.

Project Total: $115,000; Funded by: Australian Research Council - Grant-Large ($115,000); University of Tasmania.

Project Total: $60,000; Funded by: University of Tasmania - Grant-Research Infrastructure Support Scheme; University of Tasmania ($60,000).

Project Total: $10,000; Funded by: University of Tasmania - Grant-Supplementary; University of Tasmania ($10,000).

Project Total: $79,005; Funded by: Australian Research Council - Grant-Large ($79,005); University of Tasmania.